$22M fundraised through global Muscular Dystrophy research foundation

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Sydney Chocolate Ball fundraiser for Muscular Dystrophy returned for its 13th year on 21 September.  Hosted by the FSHD Global Research Foundation, to raise funds for a vital cause.

Established by philanthropist Bill Moss AO in 2007 and chaired by his daughter Natalie Cooney, FSHD Global is committed to funding research aimed at treating and ultimately curing Facioscapulohumeral Muscular Dystrophy (FSHD). 

The evening sees over 500 corporate and philanthropic guests in attendance, with Jamie Durie OAM as host.  

Celebrity chef Luke Mangan OAM has crafted a Lindt chocolate-inspired menu paired with champagne from Dom Perignon and Moet Hennessy.  

The night will be filled with immersive entertainment, auctions, and endless indulgence. This year’s theme, ‘Around the World,’ is set to transport attendees through a decadent global journey. 

Related: Record 1.4 Million Donations to Australian Fundraisers in 2023

FSHD is a progressive muscle-wasting disease that affects 1 in 7,500 Australians. It weakens skeletal muscles, severely impacting the ability to walk, smile, and perform everyday functions.  

The funds raised will support FSHD Global’s Clinical Trial Passport initiative, which aims to assist Australian patients in accessing life-changing clinical trials. 

“The Sydney Chocolate Ball has raised over $22 million, funding 66 research grants across 11 countries,” said Natalie Cooney.  

“This year’s funds will help bring clinical trials closer to Australian patients.” 

Without government funding, FSHD Global relies entirely on community and corporate support.